Leukodystrophy Friends
These are some of the other families we have met, both online and in person. We all share one thing in common:
Krabbe Disease….(or another form of Leukodystrophy) Read their stories and meet some of the beautifull children who suffer from this group of killers.
Life with LOL
http://lifewithlol.wordpress.com
Peace, Love & Trevor Foundation
http://www.facebook.com/pages/Peace-Love-Trevor-Foundation/161839287165041
Vanishing White Matter Disease
http://www.facebook.com/pages/Find-a-Cure-for-VWM/213513405456078?group_id=163743340319439
Jaylah’s Precious Moments
https://www.facebook.com/events/418896361555458
Hope for Hannah Bear
https://www.facebook.com/hopeforhannahbear
Team Olivia Kay
https://www.facebook.com/TeamOliviaKay?hc_location=stream
The Global Genes Project
BABY REESA FOUNDATION
https://www.facebook.com/babyreesa
The Meylin Project