Leukodystrophy Friends

These are some of the other families we have met, both online and in person. We all share one thing in common:

Krabbe Disease….(or another form of Leukodystrophy) Read their stories and meet some of the beautifull children who suffer from this group of killers.

Life with LOL

http://lifewithlol.wordpress.com

Peace, Love & Trevor Foundation

http://www.facebook.com/pages/Peace-Love-Trevor-Foundation/161839287165041

Vanishing White Matter Disease

http://www.facebook.com/pages/Find-a-Cure-for-VWM/213513405456078?group_id=163743340319439

Jaylah’s Precious Moments

https://www.facebook.com/events/418896361555458

Hope for Hannah Bear

https://www.facebook.com/hopeforhannahbear

Team Olivia Kay

https://www.facebook.com/TeamOliviaKay?hc_location=stream

WWW.teamoliviakay.com

The Global Genes Project

www.globalgenes.org

BABY REESA FOUNDATION

https://www.facebook.com/babyreesa

The Meylin Project

http://www.myelin.org/

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